Patient Information
Craniofacial dystosis, or Crouzon’s syndrome is a rare deformity identified at birth caused by a genetic alteration. Characteristics include a tower shaped skull, underdeveloped midface with receded cheekbones and bulging, wide set eyes. Visual disturbances are caused by imbalance of the muscles that control the eyes and hearing loss is caused by frequent ear infections. Mental capacity is usually normal, although some experience mental delay. Multiple staged surgeries to achieve skull reshaping is done as the child grows. Aperts is very similar to Crouzens Syndrome. It also includes limb abnormalities such as webbing of the middle digits of the hands and feet.
To find a physician who treats Crouzens/Aperts, click on a name below.
Robert A. Forte, MD
Hospital Privileges: Providence Hospital, Providence Park Hospital
Dr. Forte provides plastic, reconstructive and cosmetic surgery, including craniofacial surgery and cosmetic fillers such as collagen.
Ian Jackson, MD
Hospital Privileges: Providence Hospital, Providence Park Hospital
The Institute for Craniofacial and Reconstructive Surgery, affiliated with Providence Hospital. The Institute is a resource for advanced, specialized care in craniofacial, reconstructive, plastic and hand surgery. Multi-disciplinary specialists are available to provide comprehensive consultation, diagnosis, treatment and follow-up care. Areas of specialization include reconstructive and aesthetic surgery for the skull and facial regions, resection and reconstruction of complex skull base tumors, hand surgery, reconstructive breast surgery and laser surgery.
The Institute is under the direction of Ian T. Jackson, MD, FRCS, FACS, FRACS (hon.) a leading craniofacial surgeon and a pioneer in reconstructive surgery for major congenital deformities of the skull and face. Special interest in cleft lip palate, skull base tumors, vascular malformations and cosmetic surgery. Dr. Jackson is the author of many books and publications on these subjects.
Matthew L. Rontal, MD
Hospital Privileges: Providence Hospital, Providence Park Hospital
